The ALS Association BowTie was designed in partnership with Ben Kaufman, whose father Jeff passed away in 2010 after surviving 21 years with the disease. The design represents the saying, “light at the end of the tunnel”, depicting hope, and is inspired by Kaufman’s 1995 Newsweek article, entitled Digging Your Own Tunnel.
Since 1993, the Evening of Hope has raised over $1.9 million for ALS research, and the vast majority of those funds have been distributed to scientists and researchers in the State of Wisconsin. Most recently, these funds have been distributed to the Waisman Center, a leading edge research facility at the University of Wisconsin-Madison.
The Center’s most recent study, which was conducted by ALS researcher Clive Svendsen, Ph.D., over the past two years, was named “The Jeff Kaufman Project” in honor of Jeff Kaufman – local attorney, ALS patient and founder of Evening of Hope.